"Ryan had been placed on a treatment protocol (COG ANBL00P1). Ryan has completed: a 6" tummy incision to biopsy the tumor and lymph nodes , 5 rounds of high dose chemo, a 14" incision to surgically remove the tumor, 2 rounds of mega chemo to destroy all blood cells with 2 stem cell transplants, 4 weeks of radiation and six months of Isotretinoin (accutane) oral therapy, more than 100 nights spent at the hospital and many more days. Ryan officially ended that treatment in September 2005. In April 2007, Ryan relapsed. He has since completed 11 rounds of Cytoxan/Topetecan then 3 rounds of VP-16. In April 08 a brain tumor was discovered and Ryan under went a successful Gamma Knife surgery. We then started a combination of temozolomide and irinotecan. In July, Ryan under went surgery to remove what was left of the tumor in preparation for brain and spine radiation. Ryan is presently taking part in a Phase II, 3F8 antibody treatment, interthecally at Sloan in NY."
As you can see, it has not been an easy road for this family. Early in 2008, Missy was diagnosed with breast cancer and underwent treatment for the disease. We found out this week that the cancer metathesized and has also created a secondary and more dangerous effect called DIC. It has spread to her lungs and bone marrow. The post from their blog tonight:
"There are a lot of things that are wrong in this world. Tonight, Missy and I had to tell our three beautiful children that their mommy is dying. The only thing possibly worse than that, is losing a child. We have appreciated the support from all of our family and friends so much over the years since we started SuperRyan. I never, in a million years thought that I would have to type this on his page. Missy has been every bit as amazing as Ryan while fighting this hideous disease. She was full bore right up until last week, never a complaint about her condition, just constant worry about Ryan and the rest of us. It is still her main concern. I am not sure how and when Missy will be able to handle visitors, it may be just hit or miss depending on how she is feeling. She is on a number of medications for pain, cough and sleep. Our hospital appointments have been changed to Hospice care, our nurse will be here on Saturday. I will plan on having a book by the back door that you can sign if you stop by and she is not able to visit. I am asking for no food...it is a stressor just getting it together, getting everyone sat down and cleaning it all up, also, finicky kids don't help. Thank you for being there for us, praying for us and letting Missy know how much she is loved.Sincerely, Les"
I cannot even begin to tell you how important this family is to us. Please surround them in prayer - that God will bring supernatural healing for Missy in a way that only He can, that He would wrap his arms around this sweet family and provide them comfort and peace in a time that is impossible to understand. Pray for their friends and loved ones, that we can provide them the support they need during this time. Pray. Pray. Pray. I know that God is bigger than cancer and this family has been through so much.
If you want to look at their blog for updates, you can access it at http://www.superryan.blogspot.com/
Here is a picture of my family & the Morgan's - Missy & Les are standing to the right, next to Meredith & Patrick. Their 3 kids are Heidi, Will, & Ryan.
With heavy hearts,
Lauren & Ryan
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